The luckiest man alive: Loving a woman with CF

Emily’s Entourage | May 17, 2019

I’m one of the lucky ones to be born without a nonsense CF (CF) gene mutation. In fact, I was lucky to be born without a CF gene mutation at all. Until a few years ago, I had never heard of CF, let alone met a patient. CF had no meaning to me then. That is, until I met and quickly fell in love with a beautiful young woman named Mallory Smith who had both: one common CF gene mutation, and one nonsense one. At that point, CF gene mutations took on a whole new meaning, since loving Mallory made me feel like the luckiest man alive—but having a girlfriend with deadly mutations threatened our future.

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Diane Shader Smith releases ‘Salt In My Soul’

Arroe Collins | May 17, 2019

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News 8’s Marcella Lee Honored with CFF Community Champion Award

CBS 8 | May 13, 2019

In honor of Mother’s Day, the San Diego Chapter of the Cystic Fibrosis Foundation held its annual “65 Roses Ladies Luncheon” on Thursday, May 9, 2019.

The title “65 Roses” is in honor of a little boy, who years ago, thought that’s how his disease was pronounced.

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A discussion about the memoir “Salt In My Soul”

Brentwood School | May 12, 2019

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Mallory Smith: A richly compelling story of an unfinished life

San Diego Tribune | May 05, 2019

You might think that a book written by a young woman with cystic fibrosis who died at age 25 would be sad. In the case of the late Mallory Smith’s “Salt in My Soul: An Unfinished Life” (Random House, 2019, $26), you’d be wrong.

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Now Reading; April 2019

Literary Mama | April 26, 2019

If, like me, you have an app on your cell phone in which you list the titles of books you want to read, open it up! I think you’re going to want to add one or more of this month’s Literary Mama staff reading recommendations to it.

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‘Salt In My Soul’, Mallory Smith says what all of us are thinking

Gunnar Esiason | April 24, 2019

Salt in My Soul is a powerful, heartbreaking and inspiring look at Mallory Smith’s life.

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Cystic Fibrosis took her life, in her writing she left an extraordinary gift

Forward | April 24, 2019

Mallory Smith’s memoir “Salt in My Soul: An Unfinished Life” may prove the most difficult book you’ll ever read.

Because you know the ending.

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Salt In My Soul at LMU

CURes Blog | April 22, 2019

“She wanted to work in environmental education but the field work she would be doing was too risky for her health, her doctors told her not to” said Diane Shader Smith, mother of Mallory Smith, during an emotional and groundbreaking talk in the LSB Auditorium on April 8, 2019.

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Turning tragedy into triumph with Mark Smith

CF Mom Tribe | April 11, 2019

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